Category: neuroendocrine

Sharing my cancer story. It might be helpful, it might be interesting, it might be informative.

  • F.A.Q. & T.L.D.R.

    – Updated 8/26/25 – Looking for a quick review of my cancer journey? You’ve come to the right place! What kind of cancer do I have? Neuroendocrine (I’ve also had thyroid cancer, but after a thyroidectomy in 2016 there have been no further complications). Neuroendocrine cancer is considered a rare cancer, affecting 6 in 100,000…

  • Schrödinger’s cancer (ahem, cat)

    It’s a known fact that my particular neuroendocrine cancer tumors don’t show up very well on CT and MRI scans. Unfortunately that’s just the way it goes for some people. It wasn’t until I was given a Dotatate PET scan in July 2022 that I learned just how widespread my tumors had spread. So, although…

  • Tales from a clinical trial

    I’ve wrapped up my first (but hopefully not last) clinical trial! Last October I was tipped off about this trial by my group facilitator at the Harmony Hill 3-day Cancer Retreat I attended. She suggested I might want to apply. The doctors running this trial are looking at the effects psilocybin has on relieving anxiety…

  • The right care team

    I’ve settled on one particular support group as being the best fit for me: LACNETS, which is a 90-minute Zoom meeting once a week. I like it for several reasons. It focuses on my my specific kind of cancer (neuroendocrine), it’s a good blend of emotional support and practical advice, it’s very professionally run, and…

  • One year after surgery: a retrospective

    I’m still coming to terms with my new identity as a life-long cancer patient, as well as the transition from Librarian to not-Librarian. Most importantly, however, I have absolutely been loving being home after school with my daughter and eating dinner together. With my previous schedule, on an early day I’d get home at 6:45pm,…