Category: neuroendocrine

Sharing my cancer story. It might be helpful, it might be interesting, it might be informative.

  • The Big Surgery has happened!

    Ten days ago, on September 21, I had the big one. The best news to share is that although there was a possibility of a sigmoid colon resection, the surgeon didn’t end up needing to do that. YAY! There was a large walnut-sized cluster in that area that was able to be “peeled off”. Five…

  • Last post before the Big Surgery

    Well, this is the last post I am going to write before I go in for my surgery tomorrow. Check out this post to see what the surgical plan is. I took the double antibiotic pills (which gave me some nausea but not too bad) this afternoon, and have my special antibiotic soap to use…

  • Managing the work-cancer balance

    I’ve been very open with my boss about my various health issues, as I have had to take a lot of time off for all my scans, appointments, etc. She’s been very supportive. The day after my DOTATATE PET scan and metastatic cancer diagnosis on July 21st, I was in an overwhelmed, delirious state. My…

  • Exercise and carcinoid syndrome

    Last summer, in 2021 at the age of 43, I decided I needed to do something to be in better shape. I was feeling flabby and tired, and although enjoying the long golden afternoon of adulthood, being very aware it is a one-way street. That November I found a used treadmill and TV on Craigslist,…

  • My first shot

    Today I had my first shot of Sandostatin LAR Depot. I learned a lot! Firstly: I didn’t realize that they no longer allow accompanying children in the clinic. My almost-10-year-old-daughter came along to keep me company but then she had to stay in the waiting room the whole time. I felt bad for her, but…