Category: DOTATATE PET

Sharing my cancer story. It might be helpful, it might be interesting, it might be informative.

  • Schrödinger’s cancer (ahem, cat)

    It’s a known fact that my particular neuroendocrine cancer tumors don’t show up very well on CT and MRI scans. Unfortunately that’s just the way it goes for some people. It wasn’t until I was given a Dotatate PET scan in July 2022 that I learned just how widespread my tumors had spread. So, although…

  • The right care team

    I’ve settled on one particular support group as being the best fit for me: LACNETS, which is a 90-minute Zoom meeting once a week. I like it for several reasons. It focuses on my my specific kind of cancer (neuroendocrine), it’s a good blend of emotional support and practical advice, it’s very professionally run, and…

  • My support network

    As the year winds down, I am preparing to return to work on January 3. I am so incredibly lucky to have had over 3 months to recover from my surgery. Here is a starter list of everything I am grateful for: What’s next for me: I’m going to continue to have monthly injections of…

  • Appointments with my oncologists

    I had a couple of appointments with my two oncologists this week, so here are some updates! I had another shot of Sandostatin, this time in the other “cheek”. I still have a lump from my first shot back on July 30, which is a known side effect, but I’m hoping this lump doesn’t hang…