Category: tests

Sharing my cancer story. It might be helpful, it might be interesting, it might be informative.

  • Schrödinger’s cancer (ahem, cat)

    It’s a known fact that my particular neuroendocrine cancer tumors don’t show up very well on CT and MRI scans. Unfortunately that’s just the way it goes for some people. It wasn’t until I was given a Dotatate PET scan in July 2022 that I learned just how widespread my tumors had spread. So, although…

  • The right care team

    I’ve settled on one particular support group as being the best fit for me: LACNETS, which is a 90-minute Zoom meeting once a week. I like it for several reasons. It focuses on my my specific kind of cancer (neuroendocrine), it’s a good blend of emotional support and practical advice, it’s very professionally run, and…

  • One year after surgery: a retrospective

    I’m still coming to terms with my new identity as a life-long cancer patient, as well as the transition from Librarian to not-Librarian. Most importantly, however, I have absolutely been loving being home after school with my daughter and eating dinner together. With my previous schedule, on an early day I’d get home at 6:45pm,…

  • The decision to stop working

    Ever since my metastatic diagnosis almost exactly a year ago, the idea to stop working has been in the back of my mind, but I just wasn’t ready to make the leap. In the two months between my diagnosis and the Big Surgery I was in crisis management mode, focusing on tying things up, both…

  • I’m looking at you, lymph nodes

    It’s been a mostly relaxing four months since I’ve been back at work. We’ve been ramping up for a big event that took place this week, and I’m excited I got to be a part of it. In the meantime, I’ve been going in for my monthly Sandostatin shots. I’m continuing to have flushings, so…