• Here we go again…

    On Tuesday I had a 64Cu DOTATATE PET scan. This is only my second time having this particular scan, and last time in 2022 it revealed that my cancer had metastasized in a big way, which completely blindsided me. This time around I am much more mentally prepared to hear “bad news”: I belong to…

  • F.A.Q. & T.L.D.R.

    – Updated 8/26/25 – Looking for a quick review of my cancer journey? You’ve come to the right place! What kind of cancer do I have? Neuroendocrine (I’ve also had thyroid cancer, but after a thyroidectomy in 2016 there have been no further complications). Neuroendocrine cancer is considered a rare cancer, affecting 6 in 100,000…

  • Schrödinger’s cancer (ahem, cat)

    It’s a known fact that my particular neuroendocrine cancer tumors don’t show up very well on CT and MRI scans. Unfortunately that’s just the way it goes for some people. It wasn’t until I was given a Dotatate PET scan in July 2022 that I learned just how widespread my tumors had spread. So, although…

  • Free stuff for cancer patients!

    – Updated 3/10/25 – I’d been having trouble finding a good, ad-free list of free activities and experiences for cancer patients/survivors, and so decided to make my own collection, organized by who they are for. None of these are virtual nor have residency requirements, other than living in the US. Not listed: support groups, grants,…

  • Tales from a clinical trial

    I’ve wrapped up my first (but hopefully not last) clinical trial! Last October I was tipped off about this trial by my group facilitator at the Harmony Hill 3-day Cancer Retreat I attended. She suggested I might want to apply. The doctors running this trial are looking at the effects psilocybin has on relieving anxiety…