Tag: neuroendocrine

Sharing my cancer story. It might be helpful, it might be interesting, it might be informative.

  • A Potpourri of Updates

    Often my posts cover just one topic, but this one will be all over the place. Buckle up! Scans: I had an MRI (with and without contrast) plus a DOTATATE last week. It was the first time I have had both at the same time, and it was a very long, loud hour! I’m extremely…

  • ChatGPT and NETs

    My personal favorite AI system right now is ChatGPT. I use it often enough that I even signed up for a paid account. Mostly my “chats” are about organizing my thoughts, advice on interpersonal matters, and silly image creation. However, more and more I’ve been using as another tool in my tool chest for managing…

  • Ugh, spleen!

    I had an MRI this month, and an appointment with my oncologist. The good news is that my tumors continue to stay “stable” and don’t show any growth of note. Hip hip, hooray!!! He thinks the monthly Lanreotide shots have been doing their job, so I’ll continue those indefinitely. As I’ve said before, somatostatin analog…

  • It’s complicated

    This post is a rant about the complexities of my disease. So, buckle up. Neuroendocrine cancer is rare; some sources say it affects as few as 6 in 100,000 people worldwide. There are just not enough people studying this. There are not enough specialists. There are not enough new doctors entering this field. There are…

  • Scanxiety!

    This past week I had an echocardiogram, bloodwork, an MRI, and then an appointment with my oncologist to discuss all the results. Verdict: my various tumors are growing so slowly they are considered “stable”, and although I do have new tumors, they are still quite small. In Cancer World, that is all GREAT NEWS, and…