Tag: neuroendocrine

Sharing my cancer story. It might be helpful, it might be interesting, it might be informative.

  • A few updates

    Good news: remember when I had that spleen issue a couple of weeks ago, and I was prescribed Eliquis, a blood thinner? Well, initially the pharmacy said it would be a $781 co-pay for one month’s supply. Yikes!! I talked to my doctor about that, and she advocated with my insurance to lower the cost,…

  • Palliative Care

    I’ve had my first palliative care appointment, and it was nice. I spoke to a special Nurse Practitioner about my cancer story, my recovery so far, what goals I have before returning to work, and much more. We spent about an hour together, and she was very kind and good listener. I am going to…

  • Appointments with my oncologists

    I had a couple of appointments with my two oncologists this week, so here are some updates! I had another shot of Sandostatin, this time in the other “cheek”. I still have a lump from my first shot back on July 30, which is a known side effect, but I’m hoping this lump doesn’t hang…

  • Last post before the Big Surgery

    Well, this is the last post I am going to write before I go in for my surgery tomorrow. Check out this post to see what the surgical plan is. I took the double antibiotic pills (which gave me some nausea but not too bad) this afternoon, and have my special antibiotic soap to use…

  • Exercise and carcinoid syndrome

    Last summer, in 2021 at the age of 43, I decided I needed to do something to be in better shape. I was feeling flabby and tired, and although enjoying the long golden afternoon of adulthood, being very aware it is a one-way street. That November I found a used treadmill and TV on Craigslist,…